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brennalara

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brennalara last won the day on December 1 2023

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About brennalara

  • Birthday January 23

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  1. We’ve heard from many folks who attended our annual Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference that visiting with sponsors—asking them questions, handling devices used in procedures to understand how they work, and learning about clinical trials—is a highlight of the weekend. With that in mind, we want to take a moment to let you know who our sponsors are. We are so excited and grateful to partner with them. Their generous support makes it possible for us to offer this educational information designed specifically for patients and their loved ones (the registration fees cover only a very small portion of the cost of putting on the conference). If you’re joining us in Dallas August 4–6, you will have the opportunity to visit with them at their booths. If you’re joining us via livestream, you’ll hear our livestream host, Eliz, interview some of them in special livestream-only segments (these will be in the recordings, and everyone who registers will have access to them). There is still time to change your livestream registration to an in-person registration and getting hands-on with sponsors is a wonderful reason to join us in Dallas. If you have a livestream registration but you’d like to come in person (and see our special celebrity guest in person, too!), email us at support@stopafib.org. Here is a list of those who are joining us this year and a link to their information. Note that some sponsors will not have a booth. They’re sponsoring simply to support you, because they want you to have as much information as possible: Diamond Presenting Sponsor: Bristol-Myers Squibb-Pfizer Alliance Silver Sponsors: AtriCure Biosense Webster Boston Scientific Janssen Medtronic Sanofi Patron Sponsor: Milestone Pharmaceuticals Co-Sponsors: American Heart Association UTSouthwestern Medical Center Again, talking with the sponsors has the potential to provide you with a better understanding of the medications, devices, and clinical trials you’ve heard about. If you’re registered to attend via livestream but would like to come in person so you can talk to sponsors, get your questions answered, and even see and touch the devices some of the sponsors make, email us at support@stopafib.org. We hope to see you in Dallas! To your health, Mellanie True Hills Founder, StopAfib.org P.S. Visiting with our conference sponsors in person gives you a unique and important opportunity to get face-to-face with the people behind the products, medications, and clinical trials that may interest you. We do our best to ensure you get the most out of what our sponsors will share through the livestream experience, too!
  2. We are SO excited to share with you that at our 10th anniversary Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference (August 4–6) we will have an incredibly special event on Saturday evening with a celebrity guest! Since you are attending the conference (in person or via livestream), you’ll have the chance to hear this celebrity guest’s afib story! You can see who our guest is, here: Enjoy An Evening With Our Celebrity Guest. We’ll see you soon. To your health, Mellanie True Hills Founder, StopAfib.org
  3. Sunday morning at this year’s Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference, we will continue exploring patient involvement in afib research and how it could ultimately help us better manage our afib. During the Patient-Driven Afib Research Update, Dr. Bianca J.J.M. Brundel will talk about the role of “citizen science” and give us an update on the GGA/glutamine clinical trial we have helped fund. She will also discuss interim patient-reported outcomes on afib triggers, including stress, pesticides, and Covid-19. We’re excited to welcome new faculty member Myrthe Kuipers, co-founder of the Atrial Fibrillation Innovation Platform (AFIP) Foundation in the Netherlands to bring afib patient insights into research studies. She will talk about Online Communication to Improve Patient Research Involvement and discuss enhancing afib awareness and patient engagement in afib research and transforming big data into information and health insights to beat afib. Following their talks, we will have a Q&A with Dr. Brundel and Ms. Kuipers. Patient-driven research gives us a chance to guide researchers in finding afib treatments and solutions for us, and this session will share some of those results. See you in just about two weeks! To your health, Mellanie True Hills Founder, StopAfib.org P.S. The 2023 Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference is just more than two weeks from now, August 4–6 in Dallas. We’ve worked hard to make it the best, most informative conference yet for you, and we can’t wait to spend this time with you. P.P.S. Here’s the link to make your reservations at the Fairmont Hotel if you haven’t already.
  4. Saturday afternoon at this year’s Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference, we will learn about patient-powered afib research and why it is so important to us. During Patient Participation in Afib Research Using Consumer Devices, Dr. Greg Marcus will talk about what patient-powered research is. He will discuss patient involvement in, and findings of, the I-STOP-AFib N-of-1 Triggers Study, as well as other trials using consumer devices (such as the Heartline Study and the Apple Heart Study). Dr. Marcus will also share about upcoming studies using consumer devices. Then, I’m excited to share an Overview of Patient-Driven Research, in which I’ll talk about the evolution of research from patient-powered to patient-driven, and even patient-funded. I’ll share what patient-driven and patient-funded research is happening and how patients can get involved. Following our talks, we will have a Q&A with Dr. Marcus and me. This session is particularly exciting because it will set up for the presentation on Sunday morning by Dr. Bianca Brundel about her research, which we in the afib patient community are helping to fund. Patient-powered research gives us a voice in getting answers about topics that are important to us. We look forward to seeing you August 4–6 in Dallas or via livestream! To your health, Mellanie True Hills Founder, StopAfib.org P.S. Here’s the link to book your room at the Fairmont Hotel in Dallas for the 2023 Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference, August 4–6. The hotel is in the middle of the vibrant Dallas Arts District, and you may want to come a few days early or stay a few days after the conference to explore. Unsubscribe StopAfib.org PO Box 541 Greenwood, Texas 76246 United States
  5. If you’ve ever considered having surgery to get rid of your afib, we think you’ll find the first Saturday afternoon session at this year’s Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference helpful and informative! During How Patients Decide on Minimally Invasive Surgery, Dr. Randall Wolf will share about mini maze procedures: who is a candidate, how it is done, and what to expect if you’re having it. He will also talk about whether left atrial appendage closure is included. Next, Dr. Ralph Damiano will cover How Patients Decide on Open Chest/Concomitant Maze Surgery. He will share when afib can be treated during other heart surgery (called a concomitant procedure) and when it is done as a standalone procedure for afib. He will also talk about who is a candidate for which, how each is done, what to expect, and whether left atrial appendage closure is included. Following their talks, we will have a Q&A with Drs. Wolf and Damiano. If you’re considering surgery as part of your afib treatment plan, this is a special opportunity to hear from two afib rockstars and get your questions answered. See you August 4–6 in Dallas or via livestream! To your health, Mellanie True Hills Founder, StopAfib.org P.S. Today is the final day to take advantage of our discounted room block at the Fairmont Hotel! Reserve your room for the 2023 Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference here. Unsubscribe StopAfib.org PO Box 541 Greenwood, Texas 76246 United States
  6. During the second Saturday session at this year’s Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference, we will learn about Catheter Ablation Innovations. During What Patients Need to Know About Pulsed Field Ablation, Dr. Andrea Natale will talk about what the highly-anticipated Pulsed Field Ablation (PFA) is, how it works, and how it compares to other ablation technologies. He will also cover who is a candidate for PFA, what patients need to know, whether it eliminates complications, and completed and upcoming PFA trials. Next, Dr. Randy Lee will share about Hybrid/Convergent Ablation. He will explain what it is and how it is done (combining catheter and surgical ablation), and who is a candidate for it. He will talk about what energy sources, devices, and mapping tools are used for the procedure, and what to expect before, during, and after having it. Following their talks, we will have a Q&A with Drs. Natale and Lee. If you’re considering a procedure as part of your afib treatment plan, this session may be particularly helpful and informative. We look forward to seeing you August 4–6 in Dallas or via livestream! To your health, Mellanie True Hills Founder, StopAfib.org P.S. We’re so glad you’re joining us for the 2023 Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference—THE event of the year for afib patients and their loved ones. You’re going to hear the latest in research and treatment—in patient-friendly language. See you August 4–6 in Dallas (or via livestream)! P.P.S. Our room block at the Fairmont Hotel expires in two days on Friday, July 14. If you’re coming in person, now is a great time to finalize travel arrangements for the 2023 Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference. Book your room here. Unsubscribe StopAfib.org PO Box 541 Greenwood, Texas 76246 United States
  7. At this year’s Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference, we will kick off Saturday with the latest updates on catheter ablation. During Conventional Procedures and Tools, Dr. Mark Link will share who is a candidate for catheter ablation, as well as different ablation tools and techniques, new approaches, and imaging and mapping. He will talk about ablation safety and what to expect if you have one. Dr. Doug Packer will then cover Updates & Trials. He will share about recent catheter ablation trials, including what they told us, and which trials patients should know about. He will also talk about new and upcoming trials and the future of ablation. Following their talks, we will have a Q&A with Drs. Link and Packer. We look forward to having you join us August 4–6 in Dallas or via livestream, when we will hear the very latest about catheter ablations from the experts. To your health, Mellanie True Hills Founder, StopAfib.org P.S. In just a few weeks, you can get your catheter ablation questions answered during the 2023 Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference, August 4–6 in Dallas (or via livestream)! P.P.S. Our discounted rate at the Fairmont Hotel, in the heart of the Dallas Arts District, expires July 14. Make your hotel reservations here.
  8. During the second Friday afternoon session at this year’s Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference, we will learn about the latest in digital devices and artificial intelligence (AI) as they relate to afib care. During Choosing Digital Devices to Optimize Your Care, Dr. Jagmeet Singh will cover what devices are available for diagnosing and monitoring afib, which devices have regulatory clearance, and advice to optimize and provide rhythm strips and data to your doctors. He will also share about what other digital tools are coming, and what we can expect from them. Dr. Singh will then cover The Promise of AI for Afib Patients. He will talk about current AI applications in electrophysiology, including its promise and pitfalls. He will also discuss future technologies including wearables. Following his talks, we will have a Q&A with Dr. Singh. See you August 4–6 in Dallas or via livestream, when we’ll hear about the very latest, and what is coming in the future! To your health, Mellanie True Hills Founder, StopAfib.org P.S. Digital devices can give afib patients and their healthcare teams the data they need to better manage afib and allow patients to enjoy peace of mind. AI can take massive amounts of data and give us early warnings about future problems. You’ll lean more during the 2023 Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference, August 4–6 in Dallas (or when you watch it via livestream)! P.P.S. Now is a great time to make your travel arrangements for the conference. Our discounted room rate at the Fairmont Hotel expires July 14. Reserve your room now: Reserve Your Room At The Fairmont!
  9. As an afib patient (or someone who loves an afib patient), you play an important role in getting great care. That’s the focus of our first Friday afternoon session during this year’s Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference! In What Afib Patients Can Do to Get the Best Care, Dr. Eric Prystowsky will share advice for afib patients and their loved ones gleaned from decades of treating afib patients, including what doctors to see for afib, how to find or choose the right doctor, what to do and what not to do when communicating with doctors, and how patients can best work with the healthcare team. Most importantly, he will cover why sinus rhythm is so important for afib patients, and how to get treated properly. Dr. Jodie Hurwitz will cover Why Do Different Afib Patients Get Different Care. She will share about why afib runs in families and the implications for family members, such as prevention. She’ll discuss other factors that affect the care afib patients receive (race and ethnicity, sex and gender, socioeconomics, and health literacy). Following their talks, we will have a Q&A with Drs. Prystowsky and Hurwitz. It’s our mission to give you information that will help you take control of your afib and your life. We hope this session does just that. See you August 4–6 in Dallas (or via livestream)! To your health, Mellanie True Hills Founder, StopAfib.org P.S. You can take steps to get the best possible care for your afib, and you’ll learn how during the 2023 Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference. See you August 4–6 in Dallas (or via livestream). P.P.S. Our discounted rate for the Fairmont Hotel in Dallas expires on July 14. Take advantage of our special rate by reserving your room now! Dallas is a wonderful city to explore, and the Fairmont is in the heart of the Arts District; consider coming a few days before or staying a few days after the conference (our special rate is available three days before and three days after the conference). Make Your Reservation Here.
  10. People living with afib are more likely to have a stroke than those without it. That’s why we dedicate an entire session to stroke prevention at the Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference! During the second session Friday morning, Dr. Andrea Russo will cover Medications for Preventing Afib Strokes, in which she will take a deep dive into anticoagulants: what they are, who needs them, how much afib is needed to require one, how to choose the right one, reversal agents, the REACT-AF Trial of pill-in-the-pocket anticoagulants, the new Factor XI anticoagulants in trials (with the potential of stroke prevention without bleeding), and more. In Dr. Devi Nair’s presentation, Devices for Preventing Strokes, she will share about the role of the left atrial appendage (LAA), what LAA occlusion is and who it is for, when to choose LAA occlusion, device options, how it is done, and more. Following their talks, we will have a Q&A with Drs. Russo and Nair. Based on what we hear from folks who attend our conferences, fear of having a stroke is a major contributor to the stress and anxiety of living with afib. We hope this session will give you some peace of mind, knowing you have options to reduce your risk. You can register here to join us August 4–6 in Dallas or via livestream and hear from the renowned experts our doctors learn from: Get Peace Of Mind. To your health, Mellanie True Hills Founder, StopAfib.org P.S. The stress and anxiety often associated with afib don’t have to stop you from living. Learn from the afib experts about how to take control of your afib and your life. Register here to attend the 2023 Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference, August 4–6 in Dallas (or to watch it via livestream): Start LIVING Again.
  11. We’re thrilled to share with you about the speakers and topics at this year’s Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference! We can't wait to see you there! To kick off Friday morning, August 4, Dr. Jared Bunch will cover Managing Lifestyle to Manage Afib in which he will share about diet and weight, endurance exercise, sleep apnea, and other lifestyle issues related to afib. He will also talk about afib and dementia, including opportunities to lower our risk for cognitive decline. (You can click on his name above to learn more about him.) Then, Dr. Larry Jackson will cover Medications for Rate and Rhythm Control, where he will share how doctors choose which medications for us to use, which medications should not be used with specific conditions, and which ones require regular testing. He will also talk about various clinical trials and what they may mean for us. Following their talks, we will have a Q&A with Drs. Bunch and Jackson. This year’s agenda is filled with the very latest in afib research and treatment—information you can use to better manage your afib and create a new future. We look forward to seeing you August 4–6, in Dallas or via livestream, when you’ll learn from our entire esteemed faculty about the latest in afib research and treatments. To your health, Mellanie True Hills Founder, StopAfib.org P.S. We hope you’re excited to hear directly from the leaders in afib at 2023 Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference!
  12. Does anyone have experience with or information on use of cayenne pepper capsules to control fibrillation? Thanks.

  13. Hi there! If you read my message, please register for the forum. It's free of charge or any kind of hassle, and it's easy to do. Here's a link to a brief video that walks you through the registration process: How to Sign Up for the Discussion Forum - Get in Rhythm. Stay in Rhythm The advantage of registering (at least one of them) is you'll be able to read and reply to comments in this thread and others. Please consider registering! If you do, you might post your same question in the "general discussion" forum. It's where most of us read and post, and you're likely to get some helpful responses when you do.
  14. If you read my message, please register for the forum. It's free of charge or any kind of hassle, and it's easy to do. Here's a link to a brief video that walks you through the registration process:How to Sign Up for the Discussion Forum - Get in Rhythm. Stay in Rhythm The advantage of registering (at least one of them) is you'll be able to read and reply to comments in this thread and others. Please consider registering! If you do, you might post your same question in the "general discussion" forum. It's where most of us read and post, and you're likely to get some helpful responses when you do.
  15. If you read my message, please register for the forum. It's free of charge or any kind of hassle, and it's easy to do. Here's a link to a brief video that walks you through the registration process:How to Sign Up for the Discussion Forum - Get in Rhythm. Stay in Rhythm The advantage of registering (at least one of them) is you'll be able to read and reply to comments in this thread and others. Please consider registering! If you do, you might post your same question in the "general discussion" forum. It's where most of us read and post, and you're likely to get some helpful responses when you do.
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