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Carey

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Carey last won the day on August 30 2023

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  1. Carey,  who is dr. Natalie.  I’m also,from New England. Just wondering who did your successful oblation

    1. Carey

      Carey

      Hi (got a name?),

      Dr. Andrea Natale (note the spelling) is among the top EPs in the world and is arguably THE best. Last I heard he's done over 11,000 afib ablations and pioneered many techniques and methods that are considered standard today. 

      He is Italian, and his name is not pronounced like the female name Natalie. It's pronounced ahn-DRAY-a  na-TAL-ay. He's the head of electrophysiology at the Texas Cardiac Arrhythmia Institute (TCAI) in Austin, TX. After 5 failed ablations I was finally convinced to go see him in 2017, so he's the one who did my one and only successful ablation. A year later he implanted my Watchman device. I remain completely afib and flutter-free to this day, not even PACs.

      I still kick myself for not going to him first. If I had to do it over again, I'd be in Austin without question. Sure, I had to travel, but that's an absolute nothing compared to living with afib and flutter for years and taking a bunch of dangerous drugs with lousy side effects.

      Natale sort of specializes in taking on the most difficult cases and has many patients from around the world, including a number of famous/wealthy people. But he also does first-time ablations on Joe Average. So they've got the out-of-town patient experience down pat. An ablation with him involves you flying to Austin and staying about 4 days. 

      If you want to pursue this I can get contact info for you and tell you how to get the ball rolling.

  2. Carey been away for quite some time, had two ablations that held for a long time but developed extra beats after Covid. Any way just had my third ablation last Friday and my numbers are up above where they were previously. Resting heart rate was in the 70,s with the extra beats, now I woke up this morning at mid eighties? Walking around the golf course today I was in the 90’s and 100’s? Is this normal?

    1. Carey

      Carey

      Yes, it is. Your resting heart rate will be elevated for probably quite some time, possibly up to a year. It's nothing to worry about as long as it remains below 100 when you're not active. It will eventually return back to your normal baseline rate. 

    2. Gary Murray

      Gary Murray

      Thank you again

       

  3. After going without any AFIB since my first event 7/17/19,  yesterday 8/7/20, I was just about to tee off on the first hole my local golf course, when I felt "something" .  I knew within a couple of minutes that my heart was in AFIB because my pulse was very erratic and high.  Had to leave the course to see if I could potentially settle down.  After about an hour, I went to the ER (which in our town is a huge COVID risk just to walk in) and fortunately was converted with an IV of metoprolol.  

    Can I just assume my regular golf activities again? or do I need to relax for a few days?  I currently take Losartan 50 mg for BP but that is it.  The EP that I went to last year for my echo cardiogram (which was normal) had referred me back to my regular  doctor for BP medication prI escription.  

    I have had a bit of work related stress lately and been drinking a lot of decaf coffee (which I guess is still very dehydrating) and I am, admittedly a Type A personality that has trouble relaxing.  Always on the go.  What next?  Do I go back to the EP ?  

    I walk 45 minutes daily up hills etc with my dog and play golf about 4 times/week.  I want to keep up my activity but I am wondering if I need to rest for awhile after this recent AFIB?  Of course, I was hoping I would never get it again. 

    The ER doc prescribed 12.5 mg metoprolol until I see my regular doctor due to the ER visit.  I feel fine today, except I notice the metoprolol is making me a bit tired.  

    I am thinking that my BP meds were not lowering my diastolic enough.  It was really never under 80-85.

    Any thoughts?  I am bummed that this event happened out of the blue and all I can think of as a trigger is that I had been running from one thing to the next for a couple of days.  I seriously need to learn how to meditate or something !

     

     

    Hi Carey,

    I would value your opinion on this for me:  

    So, after much research (mostly from this Forum and attending the Stop Afib Conference in October)    I cautiously & "courageously"  had my ablation for afib/aflutter on January 13, 2021.  The EP  was in Seattle at Virginia Mason Hospital  (MD, FACC, FHRS   -  Section Head, Cardiology and Medical Director, Electrophysiology & Medical Director, Regional Clinicians)   He's been there since 1986 and is considered to be one Seattle's Best.   I was confident in his experience and his team.  The procedure went "great"  (CRYO for the afib & RF for the flutter)  I was very careful with the groin incision and it healed perfectly. 

     So far, in the past 30 days, I have been afib-free and been getting lots of rest so that my heart can heal (was told it takes 2 months)  Here is my question:   I was not taking any rhythm control meds prior to the ablation (I was only taking losartan, metoprolol (12.5) and Eliquis.    The morning after the procedure I was visited by the EP and the PA to discuss my not wanting to take any rhythm control drugs after the ablation.  My thinking was that I had not taken any beforehand, and my whole point of having an ablation was to do it early so as to avoid taking rhythm control meds.  The EP and I came to an agreement that I would take Amiodarone for one month only (he had wanted to prescribe 2 months)  post ablation.  (he prescribed 400 mg for the first 7 days and then 200 mg for the next 24 days)   After reading up on Amiodarone, when I got home, I decided to take the first week dose as prescribed, but then I cut the 200 mg pills in half and have taken only 100 mg for the past month)     

    Now that time is up (of taking the 100 mg for 24 days) and I can discontinue or continue on for the next month with the 100 mg dose by cutting those 200's in half, as I've been doing.   I am just trying to avoid many of the dreadful, horrific side effects I have read about from the use of this drug. 

    Thanks for reading!

    sous

     

    1. Show previous comments  4 more
    2. Carey

      Carey

      The epinephrine in novocaine shouldn't set off afib. After all, you've had an ablation, and if it's fully successful then you can just stop worrying about triggers. They won't matter anymore. All the epi will do is increase your heart rate a bit, but if it worries you then you can ask for the epi-free novocaine. 

      As for the diminished heart beats, that may be the amiodarone. I've never heard anyone describe that following an ablation.

    3. ksous

      ksous

      Thanks, Carey!  I will stop the Amiodarone is 10 days.   I will see if it changes anything,  

    4. Carey

      Carey

      Sounds good. Good luck and let me know how it goes.

  4. Hi Carey, I need to learn how to get back on board. Can u help me please? 

     

     

    1. Show previous comments  3 more
    2. sidepocket

      sidepocket

       I am not sure I did it OK on the forum however. Can u check. Thanks for your help Carey. 

      I think some one is blocking me. I have spent about an hour trying to get on the forum. What in the world is going on? I am at a lose as to what to do. Please help.

    3. Carey

      Carey

      No one is blocking you. The fact that you can send me messages is proof of that. 

      Try clicking this https://forum.stopafib.org/index.php?/forum/21-afib-forum-general-discussion/

      That should take you to the General Discussion forum where the thread you started is the most recent one. Let me know if that works for you. 

    4. Carey

      Carey

      I see you posted but you said you're having trouble doing so. I can help you with this but I think we need to have a phone conversation to do it. I'd be happy to help you with this. Just give me a phone number, your time zone, and a good time for me to call.

  5. Just to let everyone know my hospital Deborah Heart and Lung in Browns Mills, NJ is like St Judes and Shriners in Philly. They will take insurance but if you don’t have It  they still take you they do not turn anyone away! Look it up my nurse and Doctor verified that today, so if anyone is in need and doesn’t have great or no coverage look them up! It’s a wonderful place!

  6. Just had my second ablation yesterday to fix atrial flutter. Dr said it went well so we will see. Definitely feeling it today but I’m sure better tomorrow. Thanks for all your help in the past, you’re a great resource and give me great info that I can follow up on. Again thx.

    1. Carey

      Carey

      Good to hear. I hope all goes well and this fixes the problem once and for all. Let me know how it goes, okay? And glad I could help a little. 

  7. Carey- you are a great advocate- masses of excellent information.  Thank you so much.  Kind regards     Ed (UK)

  8. Always receive excellent advice, and guidance from Carey.  A safe pair of hands.  

  9. Carey- A massive thank you for your quick, knowledgeable, responses to my general questions, and those answers given to me on a confidential basis. Afib. treatments are many, and complex.  You are a massive asset to StopAfib.   Kind regards. Ed.

  10. Dear Carey.  Thank you for reading my "blog" , and for your advice for me to change location to "general topic".  I have done so.  Curious, having seen my over view......do you think I have been set on a reasonable course/plan.  I know you have amassed a lot of information re A-Fib.  I do feel very vulnerable about my A Fib. - just seems to take ages to make any progress.  Received a letter asking me to attend Cardiac clinic on 1st July. -for ECG, and update with a CCU nurse specialist.     Ed. 

    1. Carey

      Carey

      I would attend the cardiac clinic if I were you. The care you're receiving so far sounds pretty standard for the NHS, which means they're taking a very conservative approach and moving slowly. I don't think there's much you can do to speed things along unless you go private and pay out of pocket. The one thing I would suggest is asking if they can switch you off the digoxin and onto something else. Digoxin is a poor choice of meds for afib. 

  11. I tried to reply to you about the Watchman post but your inbox is full and can't receive messages.

    1. mellanie

      mellanie

      Carey, That is bizarre and it is not indicating it is full. We'll check on it when we get our heads above water. In the meantime, please email me at mhills@stopafib.org Thanks.

  12. Thanks for all the info. I just got an EKG and my heart rates have been around 90-100 even when resting. Took your advice to contact the EP and went this morning, waiting for a call back but definitely in afib, flutter. You’ve been really helpful and have eased some anxiety for me. Thx

  13. Hey Carey I’m in New England also. Had my first ablation in August of 09. Second in January of 2010 (had gone into flutter) and the last in January of 2016.

    its been increasing in frequency and duration again. I go to cardiologist next month(Dr. Set Mcclennen at Brigham and woman’s. Not crazy about another ablation. I hate being on the blood thinners. I saw in a post that you have the watchman? What is that, if you don’t mind. This is my first forum so not to sure clear as to procedures!

  14. hi carey, thanks for your reply mate, its so frustrating having this thing with us and not knowing where its guna go.  iv read that some folk stay paroxysmal for 20/30 years but others are in permanent within 3 years.!!  I'm only just managing in the paroxysmal state (mentally anyway) and the thought of persistent/ permanent afib terrifies me. I know I should man up and think myself lucky that I have afib and not a terminal illness like some poor souls get and I am really. but I just cant help worrying.

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