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netmouse last won the day on December 10

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About netmouse

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  1. Takotsumo cardiomyopathy. The name comes from the shape of an octopus trap, interestingly.  It is explained well in cardiologist Sandeep Jauhar's newest book, Heart: A History. That part starts on page 24.

      This is a book that I enjoyed generally because of the medical history stories  and suggest it for at least borrowiwng from the library, which I did, then decided I wanted to own it, so I do.


    1. netmouse


      And who knew, right?  thanks.

  2. Please tell me what treatment you are on ? Thanks, Didi

    1. netmouse


      I posted my recent afib status and treatment  here:


  3. Mellanie - I know how busy you are!  Thank you.  I wonder if you had a chance to read my message to you a few weeks ago on cortisone and such, and its possibly being a hidden epidemic for new on-set aifb that no one is really talking about, I'm hoping your medical contacts might review?  It is in context with the study mentioned a possible trigger for myself and another on this forum and why I  bring it up.

    1. mellanie


      I have not been on the forum for several weeks as I have been gone to medical conferences. I have not seen your message, and don't know anything about cortisone having any relationship to afib. What caused you to ask about that?


    2. mellanie


      I'm doing a quick search since I've not run across it in working on the guidelines and don't hear about it at afib medical conferences.

      I see some research that is old (2006) and that was called into question. For example, this quote from Dr. Ellenbogen (a close friend of ours) as a spokesperson for American Heart Association: "The AHA's Ellenbogen was also cautious about the findings. "The present study is a retrospective analysis of a large population study, and these findings will need further confirmation before definite recommendations about steroid use can be made," he said." And another researcher quoted in the same article indicated that most people who take cortisone already have an underlying condition that predisposes them to afib. []

      My sense is that cortisone is given for inflammation, and inflammation is an underlying cause of afib, so perhaps it's not the cortisone but instead the underlying condition/inflammation.


  4. Hi, Mellanie,  I wonder if your medical contacts and governing board members have an opinion on this.  This incredibly common drug is a trigger for afib, and is probably given to a large part of the millions of afibbers.  There seems a real silence on this, yet it may be a major common denominator.

    Corticosteriods are tied to new onset afib by a study detailed in the below forum topic.  I started this topic when another poster here also had cortisone treatment, as myself, then began new onset afib.  I see billions of medical reasons patients are given this drug.  One common use is large doses for athletes - and it may be that the drug is triggering afib, and not the "extreme sports" mentioned as a trigger. 

    The study cites a dose 7.5 mg or more of prednisone that triggered new onset afig.  Sports injuries like what I had are very large amounts of 40 or 80 mg (me) of the related methylprednisone.

    I find few references on the drug and its relationship to low potassium - which seems the cause of the afib and one that Carey finally got doctors to agree on in his case.  There are deaf ears out there on this.  The only website that puts this study clearly showing an afib risk from this is the Arthritis Foundation (also as a JAMA report).  I do not see the risk of cardio problems or potassium lowering caused by the drug on the ortho sports websites.  I see some about low potassium on a drug website here or there. 

    Do we have a hidden epidemic?  That no one is talking about?

    Corticosteroids trigger afib? Tie to potassium and heart

  5. Linda,

    Please stop "engaging" with Fred B (I am asking the same of him) and leave his comments alone until things cool down. Thanks.


    1. netmouse


      A cool off period makes great sense.  For me, it began with my Zia Patch post.  Fred and Otto immediately took it off on a tangent and were quite rude and wrong.  The intent of my post was lost.  Pete and Corey tried to help me out by pushing back on those two.  It may be a bit of sexism by the old boys or their quirky manner.  Otto has been fine after.

      I know Pete has had a rough time with NJgolfer in quite a few threads, he pushes back on her even saying he wouldn't take orders from a bully.  And it seems in the past there have been some "personalities". 

      If there is a really rough post, and I have received some whoppers from Fred, even telling me to eat a warfarin cookie, can I "report" a post as inappropriate and it will be removed? 

  6. Thanks for feedback . 

    Last year I received 3 Cortisone shots -a month apart for plantar fasciitis . They helped but 3 months later I was diagnosed with AFIB. 

    Coincidence? Don't know ? 

    I am in pain now and need an alternative . Any suggestions ? Thanks! Didi

    1. netmouse


      Links to a good website below.  If pain meds like Tylenol do not work, cortisone can be the next step - but only short term.

      Reading this, Physical Therapy to stretch tissues seems a good treatment.  If nothing works, surgery can help contracted tissues that seem to cause the pain. 

      I had a few shots years ago in my elbow for something like carpel tunnel.  There is strong advisement to not use many shots, it is very powerful.  3 shots for you sounds like enough no matter what else is going on.  See an orthopeadic surgeon to discuss the next step.  PT if you haven't tried that or surgery.